Kathleen J. Sawin

Children's Hospital of Wisconsin — United States

Medicine · Health Sciences

32h-index3.7kcitations124works0.82yr avg
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Research Topics

Spinal Dysraphism and Malformations(51), Family and Disability Support Research(47), Childhood Cancer Survivors' Quality of Life(31), Adolescent and Pediatric Healthcare(31), Infant Development and Preterm Care(15)

Publications123 total

Mental Health Care of Children and Youth With Special Health Care Needs Across Four Systems of Care
Journal of Pediatric Health Care·2025Open Access
Self-management in youth with spina bifida: predictors of health and quality of life outcomes
Disability and Rehabilitation·2025Open Access
Perceptions of Social Functioning Among Adolescents Aged 12–14 with Spina Bifida and Their Parents
Comprehensive Child and Adolescent Nursing·2025· 1 cited
Body Composition and Energy Expenditure in Youth With Spina Bifida: Protocol for a Multisite, Cross-Sectional Study
JMIR Research Protocols·2024Open Access
Trajectories of self‐management and independence in youth with spina bifida: Family‐related predictors of growth
Research in Nursing & Health·2024· 1 citedOpen Access
Contextual predictors of self‐management and independence trajectories in adolescents and young adults with spina bifida
Developmental Medicine & Child Neurology·2024· 4 citedOpen Access
Transition to adulthood: Experience of Japanese youth with spina bifida
Health Care Transitions·2024Open Access
Adolescent/Young Adult Self‐Management and Independence Self‐Report Scale: Preliminary psychometric findings
Child Care Health and Development·2024Open Access
Causes of death among people with myelomeningocele: A multi-institutional 47-year retrospective study
Journal of Pediatric Rehabilitation Medicine·2023· 4 citedOpen Access
An Integrative Review of the Use of the Individual and Family Self-Management Theory in Research
Advances in Nursing Science·2023· 10 cited
Body Composition and Energy Expenditure in Youth With Spina Bifida: Protocol for a Multisite, Cross-Sectional Study (Preprint)
2023Open Access
Family engagement in paediatric acute care settings: A realist review
Journal of Advanced Nursing·2023· 5 citedOpen Access
Energy expenditure and weight-related behaviors in youth with Down syndrome: a protocol
Frontiers in Pediatrics·2023· 5 citedOpen Access
Abstracts of the 2023 World Congress on Spina Bifi da Research & Care – Mental Health & Weight-Related Behaviors
Journal of Pediatric Rehabilitation Medicine·2023Open Access
Weight Status of Children Participating in the National Spina Bifida Patient Registry
PEDIATRICS·2022· 8 citedOpen Access
Trends in the early care of infants with myelomeningocele in the United States 2012–2018
Child s Nervous System·2022· 5 cited
Trajectories of self‐management and independence in youth with spina bifida: Demographic predictors of growth
Child Care Health and Development·2022· 8 citedOpen Access
The Impact of COVID-19 on Systems of Care for Children and Youth With Special Health Care Needs
Journal of Pediatric Health Care·2022· 15 citedOpen Access
Engagement of Families in the Care of Hospitalized Pediatric Patients: A Scoping Review
Journal of Family Nursing·2021· 20 cited
Accuracy of body mass index in categorizing weight status in children with intellectual and developmental disabilities
Journal of Pediatric Rehabilitation Medicine·2021· 6 citedOpen Access
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Frequent Co-authors

Timothy J. Brei(15), Melissa H. Bellin(10), Constance F. Buran(10), Philip S. Fastenau(7), Judy Thibadeau(5), Gayle Roux(5), Michele Polfuss(5), Rachel F. Schiffman(4), Verna L. Hendricks‐Ferguson(4), Marianne Weiss(3), Norah L. Johnson(3), Stacee M. Lerret(3), Shelly Malin(3), Tiebin Liu(3), Elisabeth Ward(3), Karen Rauen(3), Tera Bartelt(3), John S. Wiener(3), Kathleen Montgomery(3), Kurt A. Freeman(3)