S. Allen

Medicine · Health Sciences

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Research Topics

Cystic Fibrosis Research Advances(3), Global Maternal and Child Health(1), Healthcare Policy and Management(1), Health Policy Implementation Science(1), Childhood Cancer Survivors' Quality of Life(1)

Publications11 total

550 Adapting the “Tobacco, Alcohol, Prescription medication, and other Substance use” (TAPS) tool for use in a large adult cystic fibrosis center
Journal of Cystic Fibrosis·2025
408 Holding complexity: sustaining equity efforts in CF care through reflection, accountability, and adaptation
Journal of Cystic Fibrosis·2025
473 Pushing beyond the data: fostering inclusion for transformative change
Journal of Cystic Fibrosis·2024
821 Parent perspectives on the pediatric to adult transition process for people with cystic fibrosis
Journal of Cystic Fibrosis·2024
435 When quality improvement is not enough: a novel framework that pushes beyond plan-do-study-act to embrace “productive discomfort” and effect change
Journal of Cystic Fibrosis·2024
659 Results from a national mixed-methods assessment of patient and family advisory councils and boards
Journal of Cystic Fibrosis·2023Open Access
407 Cystic fibrosis is not a “white disease”: learning to talk to patients about medical racism and other harmful socially constructed notions of cystic fibrosis
Journal of Cystic Fibrosis·2023Open Access
406 Social determinants of health screening and intervention within a large adult cystic fibrosis center
Journal of Cystic Fibrosis·2023Open Access
374 Pushing beyond the binary: A call to action for inclusive data collection for persons living with cystic fibrosis
Journal of Cystic Fibrosis·2023Open Access
81 Results from the National Cystic Fibrosis Foundation Experience of Care survey
Journal of Cystic Fibrosis·2022Open Access
80 Development of a national cystic fibrosis patient and caregiver experience of care survey
Journal of Cystic Fibrosis·2022Open Access

Frequent Co-authors

R. Cagnina(7), Ahmet Uluer(6), M. Alao(6), Leah Ratner(5), Laurence F. McMahon(3), K. Shin(3), L. McMahon(3), K. Sabadosa(3), J. Bailey(2), D. Gamory(2), F. Asfour(2), A. Uluer(2), M. Alao(1), Carolyn Snell(1), Mimi V Stotsky(1), M. Harrison(1), Andy Smith(1), K. Burbidge(1), Catherine McDonald(1), N. De Leon(1)