Anne‐Sophie Darlington

University of Utah — United States

Medicine · Health Sciences

35h-index4.2kcitations179works2.12yr avg
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Research Topics

Childhood Cancer Survivors' Quality of Life(82), Palliative Care and End-of-Life Issues(42), Family Support in Illness(28), Cancer survivorship and care(20), Family and Patient Care in Intensive Care Units(19)

Publications178 total

Development of a Health-Related Quality of Life Tool for Adolescents and Young Adults With Cancer
JAMA Network Open·2025· 1 citedOpen Access
Supporting parent treatment decision-making in relapsed and refractory neuroblastoma: co-design of a web-based intervention
BMC Medical Informatics and Decision Making·2025Open Access
Participatory Development of a Suicide Prevention Program for Autism Community Organizations
OTJR Occupational Therapy Journal of Research·2025Open Access
Navigating Romantic Relationships and Sexual Intimacy: Challenges and Opportunities for Adolescents and Young Adults With Cancer ‐ A Literature Review of Qualitative Studies
Psycho-Oncology·2025Open Access
Suffering is a Useful Concept When We Understand the Sufferer
The American Journal of Bioethics·2025
SUPPORT MY WAY: Supporting Young People After Treatment for Cancer: What Is Needed, When This Is Needed and How This Can Be Best Delivered
Current Oncology·2025Open Access
Knowledge representation of a multi-centre adolescent and young adult (AYA) cancer infrastructure; development of the STRONG AYA Knowledge Graph
2025Open Access
Support My Way: Supporting Young People After Treatment for Cancer: What Is Needed, When This Is Needed and How This Can Be Best Delivered
Preprints.org·2025Open Access
Improving our understanding of the quality of life of patients with metastatic or recurrent/persistent anal cancer: a systematic review
Supportive Care in Cancer·2025· 1 citedOpen Access
The approach and application of analysing inductive and deductive datasets: a worked example using reflexive thematic analysis
Qualitative Research in Psychology·2025· 11 citedOpen Access
Supporting families after the unexpected death of a child
BMJ·2025· 2 citedOpen Access
Surgeons and neonatologists views about surgical decision-making in necrotising enterocolitis
Archives of Disease in Childhood Fetal & Neonatal·2025· 6 citedOpen Access
Assessing patient-reported outcomes (PROs) in paediatric oncology research: Which PRO would a pro pick, if a pro was picking PROs?
EJC Paediatric Oncology·2025· 1 citedOpen Access
Flexibility in patient-reported outcome and health-related quality of life measurement: The EORTC Quality of Life Group measurement strategy
European Journal of Cancer·2025· 5 citedOpen Access
Feeding behaviour in children and young people with a ventricular assist device (VAD): a scoping review
Intensive Care Medicine – Paediatric and Neonatal·2025· 1 citedOpen Access
Adolescent and young adult (AYA) patient involvement and engagement in European health care and research projects: expanding the scope of patient advocacy
ESMO Open·2025· 1 citedOpen Access
Core Patient-Centered Outcomes for Adolescents and Young Adults with Cancer: A Comprehensive Review of the Literature from the STRONG-AYA Project
Cancers·2025· 6 citedOpen Access
“Meet us where we’re at:” Towards engaging and inclusive research with young adults with a lived experience of cancer
Journal of Clinical and Translational Science·2025Open Access
“They had to watch”: How parents perceive the suffering of siblings of children with cancer
Palliative & Supportive Care·2025Open Access
Mapping and comparing the quality of life outcomes in childhood and adolescent and young adult cancer survivors: an umbrella review and future directions
Quality of Life Research·2024· 3 citedOpen Access
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Frequent Co-authors

Jan J.V. Busschbach(8), Sally Wheelwright(7), Samantha C. Sodergren(7), Jolie J. Gutteling(6), Robert A. de Man(6), Olga Husson(5), Rob Pieters(5), Marry M. van den Heuvel‐Eibrink(5), Deborah Fitzsimmons(5), Jan Passchier(5), Juan Ignacio Arrarás(4), Eva Hammerlid(4), Bernhard Holzner(4), Jaap C. Reijneveld(4), Tom Young(4), Andrew Bottomley(4), Dagmara Kuliś(4), Gudrun Rohde(4), Iwona M. Tomaszewska(4), Ivana M.M. van der Geest(4)