Amy Gietzen

Scleroderma Foundation — United States

Medicine · Health Sciences

9h-index214citations31works1.22yr avg
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Research Topics

Systemic Sclerosis and Related Diseases(26), Dermatologic Treatments and Research(6), Inflammatory Myopathies and Dermatomyositis(6), Body Image and Dysmorphia Studies(5), Multiple Sclerosis Research Studies(3)

Publications30 total

Differential Item Functioning on the Patient Health Questionnaire‐8 by Disease Subtype, Language, Sex, and Age among People with Systemic Sclerosis: A Scleroderma Patient‐centered Intervention Network Cohort Study
Arthritis Care & Research·2026Open Access
Evaluating context effects on PHQ-8 somatic item scores among people with a chronic medical condition: a scleroderma patient-centred intervention network randomised experiment
Epidemiology and Psychiatric Sciences·2026Open Access
Protocol for a two-arm parallel randomized controlled trial to evaluate patient and researcher co-presentation of research results: the Scleroderma Patient-centered Intervention Network—Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) trial
Trials·2025· 1 citedOpen Access
Factors associated with eHealth literacy among people with systemic sclerosis: A Scleroderma Patient-centred Intervention Network (SPIN) Cohort cross-sectional study
Journal of Scleroderma and Related Disorders·2025· 1 citedOpen Access
Anxiety symptoms and associated factors in the Scleroderma Patient-centered Intervention Network (SPIN) cohort: a cross-sectional study
Lara D. Veeken·2025Open Access
Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience: the SPIN-CLEAR Trials
Trials·2025· 2 citedOpen Access
Evaluation of the Coping Strategies Questionnaire-Revised for fatigue in systemic sclerosis: a Scleroderma Patient-centred Intervention Network (SPIN) cohort study
Clinical and Experimental Rheumatology·2024Open Access
Fatigue levels and associated factors in systemic sclerosis: a cross-sectional study of 2385 SPIN Cohort participants
Lara D. Veeken·2024· 2 citedOpen Access
The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study
The Lancet Rheumatology·2024· 6 citedOpen Access
Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study
Journal of Scleroderma and Related Disorders·2024Open Access
Minimal Detectable Changes of the Health Assessment Questionnaire–Disability Index, Patient‐Reported Outcomes Measurement Information System‐29 Profile Version 2.0 Domains, and Patient Health Questionnaire‐8 in People With Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Cross‐Sectional Study
Arthritis Care & Research·2024· 1 citedOpen Access
Oral health in systemic sclerosis: A scoping review
Journal of Scleroderma and Related Disorders·2024· 2 citedOpen Access
Factors associated with physical function among people with systemic sclerosis: a SPIN cohort cross-sectional study
Lara D. Veeken·2024· 2 citedOpen Access
The association of resilience and positive mental health in systemic sclerosis: A Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study
Journal of Psychosomatic Research·2024Open Access
Factors associated with satisfaction with social roles and activities among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study
RMD Open·2024· 1 citedOpen Access
Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews
Research Involvement and Engagement·2024· 2 citedOpen Access
Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic: A SPIN COVID-19 Cohort Longitudinal Study
International Journal of Behavioral Medicine·2024· 1 citedOpen Access
Factors Associated with Physical Function among People with Systemic Sclerosis: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort Cross-sectional Study
2023· 1 citedOpen Access
Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study
EClinicalMedicine·2023· 3 citedOpen Access
Validity, Reliability, and Differential Item Functioning of English and French Versions of the <scp>10‐Item Connor‐Davidson</scp> Resilience Scale in Systemic Sclerosis: A Scleroderma <scp>Patient‐Centered</scp> Intervention Network Cohort Study
Arthritis Care & Research·2023· 10 citedOpen Access
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Frequent Co-authors

Brett D. Thombs(28), Michelle Richard(28), Geneviève Guillot(27), Linda Kwakkenbos(26), Marie‐Eve Carrier(24), Susan J. Bartlett(24), Vanessa L. Malcarne(24), Karen Gottesman(23), Maureen D. Mayes(22), Andrea Benedetti(21), Luc Mouthon(20), Maureen Sauvé(20), Catherine Fortuné(19), Richard S. Henry(18), Marie Hudson(18), Daphna Harel(15), Laura K. Hummers(15), Robyn K. Wojeck(14), Catarina Leite(13), Sabrina Hoa(13)